2019 Recipients

Recipients of the 2019 “Jeffrey G. Hoeh” Memorial 30th Golf Scramble

  

Division of funds with two or more recipients

 

Any hole, cart, pin flag, program ad or t-shirt sponsor monies donated in a recipient’s name will go entirely to that person (minus related expenses). All proceeds from the golf scramble, to include pre-sale raffle ticket money, will be split evenly among all our recipients. Our purpose is to give back the love and kindness that was shown to us during our time of need. All our dedicated volunteers work tirelessly for the good of all our recipients to be that “touch of an angel.”

 

 

Recipients of the 2019 “Jeffrey G. Hoeh” Memorial Golf Scramble

  

Katie M. –Katie is a 26-year-old wife, daughter, sister, niece, cousin, friend, source of joy and bright light in this world.  She was given the diagnosis of osteosarcoma (a rare form of bone cancer) in October 2018.  Katie is one of the most compassionate people you will ever meet.  She has always taken time to put other people’s needs before her own and has an invaluable core of positivity.  She discovered early on that her heart is most full when she is helping others.  While earning an undergraduate and master’s degree in speech pathology, Katie was a caregiver for 4 families with special needs children (ranging from Autism to Dravet Syndrome) and has continued to offer care for 2 of the families for over 7 years.  After graduation, Katie chose a position providing speech therapy in a low-income school district where her steadfast ability to keep her students’ progress foremost, while offering a safe and loving environment, resulted in life changing improvements for her 60+ students.  Katie was also a speech pathologist at Mercy hospitals.  Working in a hospital setting gave her the chance to appreciate aspects from both the caregiver as well as the patient point of view.  Due to this illness, Katie is unable to work or provide care for these families.  Katie and her husband Nick celebrated their 1-year wedding anniversary this past November.  They had just begun settling into their small home and were ready to start a family when their path took a sharp turn.  In the summer of 2018, an increasing discomfort in her hip was hindering normal life.  Eventually the diagnosis was made in October.  What a shock.  Katie began treatment at Cincinnati Children’s Young Adult Cancer Center.  The initial plan of traditional, in-patient chemotherapy took more than its toll on Katie and included unexpected, extensive stays in the hospital due to complications.  This treatment plan did not produce the results hoped for and came to a halt.  A total change in treatment plan has led to a new chemo regimen, radiation, and the use of a targeted therapy drug (precision medicine based on the individual genomics of this cancer).  The sheer identification of this gene and news that there is a drug that specifically targets it was a miracle!  However, after 3 appeals and over 50 letters supporting Katie’s cause, insurance denied coverage of this targeted therapy drug.  The cost of this drug is approximately $13,000 per month ($156,000 per year).  We are pursuing avenues to reduce the cost but even a reduction will still result in an immense monthly bill.  This along with their other mounting medical costs is a huge burden for this young couple.  We believe the success of Katie’s treatment plan will pave the way and provide hope for other solid tumor cancer patients as well.  Katie has an opportunity for a lifetime of impact.  She is on a mission of healing and helping.  Katie is determined to keep her light shining through this battle and you can count on her contagious smile to kindle your light as well.  From day one, Katie asked, “What does God want me to learn from this?” and while she continues to exude grace and courage, many of us are responding, “We think it’s the rest of us who are learning”.  For God all things are possible!

 

 

Angela H. - Angela is the 48-year-old wife of Matt and mother to Brett (20), Allison (18) and Benjamin (16). She was diagnosed with ALS in August of 2014 and started showing signs of a motor neuron type of disease a year prior to that.  She was able to continue working until March of 2015 at which time it became too dangerous to drive and walk because of the loss of muscle strength and by mid-year she would require assistance 24 hours a day.  By the summer of 2016 Angela had completely lost her independent mobility and lost her voice.  Since then we have adapted the best we can.  Angela communicates with an eye scanning computer, we have remodeled our house for accessibility, gotten a power wheelchair (Angela can’t control it but it can get her in a safe comfortable position), and gotten a wheelchair accessible van.  Upon her diagnosis, I panicked of course, and wanted to sell our house and downsize to a small ranch that would help us spread our funds.  Angela talked to me and wanted to keep our house, keep our kids active in clubs and sports, take vacations, and generally live our life as normal as we possibly could.  At the time we had 2 kids in high school and 1 in middle school.  We now have 2 kids in college and 1 in high school.  We have been blessed with the support of a great group of family and friends from all over the state. We have had hundreds of meals provided to our family by our wonderful family and friends.  We have had countless hours of volunteered caregiving time donated over the last several years.  Over the last year, we have hired a wonderful professional nurse caregiver to supplement our volunteer group.  Today, Angela is still breathing and eating on her own and enjoys getting out and spending time with our family and friends. I have been able to keep my job and the associated health insurance.  However, insurance does not cover in home care (of more than 2 hours per week).  We have made arrangements to get a trial medication from Japan and take a daily vitamin and supplement plan that improves her strength and quality of life.  This medication and supplement plan are also not covered by insurance. The caregiving needs have passed the skills and strength of the ladies that volunteer for us.  Our parents are in their 70s and cannot physically transfer Angela as needed.  Therefore, we need to drastically increase the amount of professional caregiving that Angela is getting, but there is no doubt we will continue to get help from our wonderful family and friends.

 

 

 

Sarah B. - Sarah is 37 years old and is married to Scott. She is Mom to Jillian (6), Caroline (4) and Emma (1).  They are Cincinnati born and raised and love raising their young family here.  She loves spending time with family and friends, coaching her

daughter’s soccer team and being outside.   Sarah has always loved helping others and working with children, so a career in speech-language pathology at Cincinnati Children’s Hospital was perfect.  For many years, she provided therapy to children who were too medically fragile to leave their home to receive therapy services at the hospital.  She currently provides therapy to children with medically complex needs which impact their feeding and language skills. Over the years, she has worked with children with a variety of medical needs, including cancer, which has provided her with an appreciation of both the patient’s and the caregiver’s point of view. Her medical journey started while breastfeeding her 8-month-old daughter and she discovered what she thought was a clogged milk duct.  After an ultrasound she was shocked to be diagnosed with Invasive Ductal Carcinoma (Breast Cancer) in August 2018.

Sarah’s initial treatment was 6 rounds of chemotherapy. Each round she would have to take 3-5 days off from work to recover. If this was not enough of an impact on their finances, they would have the added cost of sending their children to daycare additional days as she was unable to care for them alone. Due to the physical toll of chemotherapy, she left work on medical leave in December 2018 and continued to be out of work to recover from her recent bilateral mastectomy. All in all, she was out of work for more than 3 months, during which, she only received a portion of her salary. In addition to her other treatments, she is receiving hormone targeted drug infusions and still has nine more of these treatments remaining.  More time off will be required this Spring as they plan her second stage of breast reconstruction surgery.  The family has a high deductible HSA which they paid at the time of her initial diagnosis in August 2018 and will need to pay again this fall as her treatment continues.  This medical journey continues to bring an outpouring of support from family, friends, co-workers and complete strangers. 

 

 

Mary H. – Mary was a healthy young girl. She walked, talked, sang and played like most normal children. She loved to dance, eat pizza and ice cream. She has always been a sweet and happy girl. Mary was misdiagnosed several times with mixed receptive expressive language disorder, moderate retardation and ADD. In 2012 when Mary was 10 years old, she fell in their church nursery school and had a grand mal seizure for the first time.  Her parents were scared and confused as to what was wrong. After months of genetic testing, the diagnosis was that Mary had an ultra-rare degenerative brain disease called Niemann- Pick disease type C1. It is a very rare progressive disease that is ultimately fatal. Only about 500 cases have been discovered worldwide. The average age of death is around 16 years old. Mary just celebrated her 17th birthday this month. The disease has taken her speech and ability to walk and eat. She suffers from dementia, scoliosis, severe pain at times and muscle tone loss. Her left lung is collapsing, and she has had pneumonia several times this past year. Mary’s brain forgets to tell her to breathe so she is on a bi-pap machine and oxygen as needed. Her family have watched her decline rapidly over the last several years. She has a fulltime nurse as well as Starshine Hospice care. Her Mom (Rhonda) works hard at home 24 hours a day administering medications and going to several appointments regularly. Her 7-year-old brother David is heartbroken having to watch his big sister go through so much. Dad (Harry) works two jobs to support the family. Although they struggle, they feel that God has always made a way for them. Her parents draw strength from watching their daughter fight for her life and sometimes still finding the ability to smile! Mary is an inspiration to all that have met her and her family is grateful for all the support they have received. 

 

 

 

    

 

 


 

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